The Health and Social Care Board is currently holding a 13-week pre-consultation on stroke services in Northern Ireland to listen to a wide range of views from service users, staff, key partners and the general public. Registered nurse Rosemary Patton from Belfast was a full-time carer for her father who suffered a stroke. She says changes to stroke services can only happen if people make their voices heard.
We recently featured a blog by the Patient Information Forum’s Claire Murray about why it’s so important for people to have easy access to good quality health information. If that’s the case then why, asks Sean Brown, are so many healthcare professionals using terminology that is utterly meaningless to service users?
South Eastern Health and Social Care Trust and its Volunteer Peer Advocacy Service were the recent winners of the Patient and Client Council Excellence in Co-Production Awards. As part of Co-production Week (03-07 July) Martin Logue tells of his journey to accessing the service which, in turn, has enabled him to become part of the Peer Advocacy Service.
Health Information Week runs from 3-9 July with the aim of promoting good quality health information to support patients, service users and the public. Claire Murray of the Patient Information Forum (PIF) explains why this is so important.
Catherine Brown wanted to become a speech therapist after finishing a degree in English and Linguistics at Queen’s University. But after spending the summer in America looking after young people with a learning disability she realised that her true vocation lay elsewhere. Now coming to the end of her first year studying for a nursing degree, Catherine tells us why it is a real privilege to be a student nurse
Today is the 25th anniversary of International ME Awareness Day. The PCC first became involved with this long-term condition in 2013 following a fibromyalgia/ME focus group as part of the People’s Priorities report process. Head of Operations, Louise Skelly, recounts the journey to date.
In the run-up to Arthritis Care Week, from 8-14 May, Oonagh Diamond from Magherafelt explains how a bout of anaemia led to her being diagnosed with this chronic progressive disease that causes painful deformity and immobility in the joints.
Co-production should be both straightforward and challenging. We should be outside our comfort zones, moving away from 'us' and 'them' and working towards 'we'. Read what Fiona McLaughlin has to share on what makes co-production work.
Sorcha McGuinness is Chief Executive of the Huntingdon’s Disease Association Northern Ireland, which provides information, advice and support to patients and carers impacted by Huntington’s disease in Northern Ireland.
On Wednesday (29 March) we held our second – and largest - Membership event. In fact, we were overwhelmed with the response from members wishing to attend and filled the Great Hall at Belfast City Hall to capacity with 400 members from all across Northern Ireland.