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Blog

22/09/2016

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Caring for someone with Huntington’s Disease means having to grow up fast

Ashley Clarke, a carer, full time student, volunteer and trustee of Huntington’s Disease Association Northern Ireland (HDANI) describes her experience of caring for her dad who has Huntington’s.

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Blog

15/09/2016

14 Comments

Improving the UK medical register

Would you find it helpful to have more information about your doctor, on the medical register? The General Medical Council’s Chief Executive, Niall Dickson explains what the UK medical register is and how you can share your views on improving the register.

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Blog

01/09/2016

7 Comments

Organ Donation – Having information to make decisions

There are currently around 657,000 people from Northern Ireland on the NHS Organ Donation Register, that’s around 36% of the total population.

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Blog

11/08/2016

24 Comments

Travelling to hospital appointments in Northern Ireland

Reaching specialist health and social care services in Northern Ireland, can often involve substantial travel. The availability of transport is an essential part of making health and social care services work efficiently, yet people have missed appointments and cancelled appointments, due to issues with transport. Considering transport needs when planning and delivering health and social care services, could help make services more efficient by getting people to the right place at the right time.

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Blog

04/08/2016

0 Comments

Raising awareness of Sarcoma

Sarcomas are rare cancers that develop in the supporting or connective tissues of the body such as muscle, bone, nerves, cartilage, blood vessels and fat. Paul’s Campaign started in 2011, after a young man called Paul from Derry, passed away, following a battle with Sarcoma. Lisa-Marie Holden, from Paul’s Campaign explains more.

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Blog

21/07/2016

18 Comments

Hearing about patients’ experiences is important

The Northern Ireland Executive has asked members of the public for feedback on the draft Programme for Government (PfG) 2016-21, to help inform strategy and budget over the next five years. A series of indicators will be put in place to measure improvement of public services. The Patient and Client Council has responded to this consultation.

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Blog

14/07/2016

2 Comments

Voices4Care - your opportunity to make a difference in palliative care

If you are receiving palliative care, caring for someone with palliative care needs, or interested in improving palliative care, the All Ireland Institute of Hospice and Palliative Care (AIIHPC) want to hear from you. This week's guest blogger, Brendan O'Hara explains more.

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Blog

08/07/2016

6 Comments

Care and support for adults in Northern Ireland

People in Northern Ireland are living longer, and that’s something to celebrate, however it also presents challenges for how Health and Social Care services are planned and delivered.

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Blog

30/06/2016

2 Comments

Involving people – a key point at NICON Conference 2016

This week the Northern Ireland Confederation for Health and Social Care (NICON) held their annual conference. I was there along with some patients, service users, members of our membership scheme and staff who work for the Patient and Client Council.

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Blog

23/06/2016

7 Comments

Difficult conversations with families

‘Nurse NEWS’ describes an encounter with family members in a hospital lift, and the difficult conversation of ‘do not resuscitate’.

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Blog

17/06/2016

16 Comments

Patients' views on diabetes

With more than 86,000 people in Northern Ireland living with Diabetes, we’ve been gathering patients’ views on the condition and their hopes for services in the future. Deepak Samson explains more.

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Blog

10/06/2016

6 Comments

Share your views on the draft Programme for Government

The Northern Ireland Executive has released the draft Programme for Government (PfG) 2016-21. This document will provide the context for government strategy over the next five years and help inform the budget.

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Blog

03/06/2016

0 Comments

Celebrating Carers

Carers week runs from the 6th June - 12 June, and we think there is much to celebrate.

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Blog

26/05/2016

3 Comments

Patient access to information

I took part in a national conference this week, organised by the Patient Information Forum.

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Blog

19/05/2016

10 Comments

What's it really like for people living with dementia and their families?

We’re living longer, which is something to celebrate, however, living longer, can bring more health complications.

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Blog

12/05/2016

10 Comments

The challenges of living with Coeliac disease.

Coeliac disease is a complete intolerance to anything made from wheat, barley and rye. Tina, who has coeliac disease, shares her experience of being in hospital and coping with the limited food available.

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