Today, the Patient and Client Council has published a compilation of fibromyalgia patient stories called ‘A Hidden Condition’, which highlights the experience of patients living with fibromyalgia.
Fibromyalgia is a long term condition that causes pain all over the body. It doesn’t reflect any specific identified problems with joints muscles, or bones and impacts on every aspect of a person’s life – physical and emotional.
Speaking at a Fibromyalgia Knowledge Exchange Seminar, held in Belfast today, Louise Skelly said
“In our Health service, if we are to make a true difference for patients, then we need to listen to each other – its not patient vs professional. We’re all equal, and bring different strengths and expertise, which helps solve problems.
“In Northern Ireland, there are few services available to people with fibromyalgia, and that’s something we’re trying to change. Granted, there is no cure for condition, but there is evidence that treatment can ease some symptoms and improve quality of life.
Louise summarised "For the past few years, we’ve been working with people with fibromyalgia, and medical professionals to try and bring about services in Northern Ireland. It’s a long road, and its not finished yet, but some progress is being made.”
The Patient and Client Council continues to help people have their voices heard on Health and Social Care services in Northern Ireland.
Read 'A Hidden Condition' online, or request a hard copy by emailing your name and postal address to firstname.lastname@example.org
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